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Understanding the diversity and dynamics of living with diabetes : a feasibility study focusing on the case

机译:了解糖尿病患者的多样性和动态:以病例为中心的可行性研究

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摘要

Despite growing evidence about treatments, many people living with diabetes have poor diabetes control even when healthcare is available. One difficult issue is how to apply medical evidence to individuals. This feasibility study explores change over time and the diversity of pathways to similar health outcomes, to understand how evidence can be tailored to the individual. Six people living with diabetes (two with type 1, and four with type 2) agreed to a series of interviews and diary-keeping. Reading the dataset for each individual reveals a person changing over time through interactions with people and their context. Identifying time as a theme is difficult, as it is ubiquitous. Outcome means little to those living with diabetes: they are living on through time. We developed attributes for each participant relevant to diabetes outcome, describing how they related to others and their environment, capturing emergent properties rather than detail. A similar health outcome could be achieved very differently. Comparison of patterns of attributes may be useful. However, the dynamic, relational nature of the attributes is easily lost from view. How people function in terms of time, change and interaction may be most important for tailoring interventions for improved health outcome.
机译:尽管有关治疗的证据越来越多,但即使有医疗保健,许多糖尿病患者的糖尿病控制也很差。一个困难的问题是如何将医学证据应用于个人。这项可行性研究探讨了随着时间的变化以及达到类似健康结果的途径的多样性,以了解如何针对个体量身定制证据。六个糖尿病患者(两个患有1型糖尿病,四个患有2型糖尿病)同意接受一系列访谈和日记。读取每个人的数据集后,就会发现一个人通过与人及其周围环境的互动而随时间变化。将时间确定为主题很困难,因为它无处不在。结局对那些患有糖尿病的人而言意义不大:他们一直生活在一段时间内。我们为与糖尿病结局相关的每个参与者建立了属性,描述了他们与他人及其周围环境的关系,捕获了新出现的属性而不是细节。类似的健康结果可能会有很大不同。属性模式的比较可能有用。但是,属性的​​动态,关系性质很容易从视图中丢失。人们在时间,变化和互动方面的功能方式,可能对于调整干预措施以改善健康状况最为重要。

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